Tuesday, September 14, 2010

And then there was....

ALS.
Back on the table as the "likely" diagnosis.
Updated: The last time she saw the neurologist he had the preliminary report on the EMG. He figured if she had ALS there would be much more abnormalities showing. He also didn't know why they hadn't done more needled on the right side of her body. Given everything else that is happening to her he thought it was looking more like the MG. But then the MG test came back negative and he got the full report which they saw many more abnormalities.
Basically there is nothing left for her to have -which is eventually how they get to ALS - eliminate everything else. They are doing a chest MRI to rule out the possibilities of a tumor growing there since they have looked everywhere else. He also put her on MG medication just to be sure that she didn't improve on it, which she hasn't. Lastly he did one needle in her right arm and he saw abnormalities in her right arm, which is indicative of ALS. Tues she will be see at the UCI ALS clinic and get a second opinion. She will also be meeting with a speech pathologist, physical therapist, and a spectrum of people who will help give her the best quality of life that she can have.
We are surviving. We have up and down moments. Our faith sustains us as does our love. We are working on all of the projects that are important to her and she will leave a legacy.
Thank you for all your kind words ans support.

5 comments:

Raelyn said...

WHAT???? How can they rule it out...and then put it back on the table???
I am so sorry Lisa!

Sabrina said...

I am so sorry! Please know that you are all in my prayers

The Hamlin Family said...

Oh Lisa...We are praying for your mom and your family...I'm so sorry. You have gone through a lot lately...hang in there.

The Henderson Family said...

I'm sorry! We will keep you all in our prayers! Let us know when you know anything more and if there is anything that we can do!

Megan said...

I don't have this going on personally in my life, but my friend I was talking about is going through a little of the same thing. Can't seem to make up their mind of what's going on. My prayers are with you and your family...